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Students with FA demonstrate a range of cognitive abilities, and many have higher-than-normal intelligence. However muscle weakness and fatigue can make it difficult for students to keep up with the physical demands of handwriting, completing assignments, organising books and materials, etc.
Everyday Thom endures a great deal of pain, but he never complains. He just lives each day to the fullest … he has taught me so much … He is truly a hero in my eyes and I love him so very much.
Taken from Living with MD by Leslie, whose husband has muscular dystrophy
Our vision is that people with Spina Bifida and/or Hydrocephalus will participate to their fullest potential in all aspects of life.
Taken from IASBAH’s (Irish Association for Spina Bifida and Hydrocephalus) Goals
http://www.iasbah.ie/about.htm
I realize that I can do things and I can do them very well. Some things I can’t do ... but I will have to live with that. At 16, I believe, I’ve learned more than many people will learn in their whole lives.
Taken from ‘It’s OK to be different’, by Angie Erickson,
(student with Cerebral Palsy) Newsweek 24 October 1994
Most people with OI [Brittle Bone Disease], with support and specialized equipment, can lead active and fulfilled lives.
Patricia Minor author of What Life is Like Living with OI, PublishAmerica: Frederick, MD, (2006); taken from