More Information


  1. The website of the Prader Willi Syndrome Association Ireland (PWSAI)
  2. The Prader-Willi Syndrome Association, Uk
  3. Prader-Willi Syndrome Association, US
  4. Prader-Willi Alliance of New York

Further Reading

Documents relating to a study published in March 2017 by The Prader-Willi Association of Ireland

A Population Based Profile of Prader-Willi Syndrome in Ireland (March 2017) / Executive Summary / Press Release

PWS Research previously conducted in Ireland:

1.    Educating Students with Prader-Willi Syndrome.  This research was conducted by Dr. Colin Reilly and you can access an article based on it at:

2.    There has been ongoing research by the Paediatric Endocrinology Team at the National Children’s Hospital, including by Prof. Hilary Hoey, Prof. Edna Roche and Dr. Judith Meehan.  This work includes the first Irish national study of children with Prader-Willi Syndrome.  

A selection of research publications from this group includes:

3.    Mental Health Problems in Children with Prader-Willi Syndrome.  This research was led by Dr. Norbert Skokauskas and you can access the article based at:


Click here for SESS Book Borrowing Library

  1. Butler, M.G., Lee, P.D.K. and Whitham, B.Y. (eds.) (2005) Management of Prader-Willi Syndorm (3rd edn), Newe York, Springer.
  2. James, T. N. and Brown. R. I. (1992) Prader-Willi Syndrome: Home, School and Community, London: Chapham and Hall.
  3. Waters, J. (1999) Prader-Willi Syndrome: A Practical Guide (Resource Materials for Teachers Series), London: David Fulton Publishers.

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